To watch a loved one suffer without good medical care is hard.
To see one not treated with respect and dignity is difficult.
To fight for months to get information from the health system is wearisome.
To struggle to communicate when no one will listen is stressful
To talk to hospital staff who see it’s just palliative care and wonder why they should care.
To talk to hospital liaison staff who say, not now we have other problems.
To try the health ombudsman who don’t bother to read the facts because it’s just palliative care.
To be ignored and belittled by senior doctors who tell you what a good service they have.
To be shocked by their arrogance.
To complain to the Minister for Health about a doctor and be offered grief counselling because it’s just palliative care and your complaint does not matter.
To fight and fight to be heard and no one will listen except those who have also been there.
To have friends comfort you by saying the health system’s broken, you can’t change it.
Be kind to yourself and give up like everyone else.
To ask why the vulnerable don’t have a voice and feel the silence.
There is no money and not enough votes from dying people, why should they matter ?
Today I had a new experience,I was blocked on twitter by Palliative Care Queensland,
the people whose role it is to care and advocate.
And they do care and they do advocate but maybe only for their own careers.
Seems one of our blogs hit a nerve.
The vulnerable count, every person counts, and I will not give up.
Every obstacle creates more determination.
“…the moral test of government is how that government treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; those who are in the shadows of life; the sick, the needy and the handicapped. “
~Last Speech of Hubert H. Humphrey